From Pancreatitis to Progress: My Transformative Journey
In June 2017, a single episode of pancreatitis changed everything for Paul Suntup. What began as a painful inflammation of the pancreas quickly led to a series of alarming health developments, ultimately culminating in a diagnosis of acinar cell carcinoma, a rare form of pancreatic cancer. This story highlights the challenges and triumphs of navigating a cancer diagnosis while seeking alternative treatments and maintaining a hopeful outlook.
The Diagnosis Journey
Paul’s struggle with recurrent pancreatitis prompted his medical team to monitor his pancreas closely with regular CT scans. After enduring these recurring bouts for over a year, a troubling scan in October 2018 led to a biopsy that confirmed the presence of stage II acinar cell carcinoma. The irony was not lost on Paul; the persistent pancreatitis, which was a source of distress, had inadvertently allowed for early detection of the cancer.
Surgical Intervention
In December 2018, renowned surgeon Dr. Ganesh Gunasekaran performed a distal pancreatectomy along with a splenectomy at Mount Sinai in New York City. The procedure successfully removed the tumor located in the tail of Paul’s pancreas. Given the clear margins and negative lymph nodes, Paul opted against immediate post-surgical chemotherapy, believing that unnecessary treatment could do more harm than good.
A Pivotal Change
By March 2019, follow-up scans showed no disease, igniting a sense of hope. However, just three months later, a shocking discovery of 25 new tumors in Paul’s liver turned his world upside down, advancing his condition to stage IV. Seeking a second opinion, he consulted Dr. Richard Lee, an oncologist in Merrick, Long Island, who recommended starting chemotherapy immediately with FOLFIRINOX, a powerful combination of drugs.
Confirming the Diagnosis
Before commencing treatment, Paul insisted on another biopsy to ensure the tumors were indeed acinar cell carcinoma. The confirmation came just as he was preparing to begin his infusions. After receiving the initial treatment, Paul decided to explore alternative therapies, stepping away from traditional chemotherapy for four months. However, he ultimately returned to standard care after these approaches yielded no results.
A New Hope with Genetic Testing
While undergoing genetic testing, Paul discovered he carried the BRCA2 mutation, making him eligible for the newly approved drug Lynparza. On December 27, 2019—just one day before his 70th birthday—this breakthrough brought renewed hope as he commenced treatment. Over the next 18 months, Paul’s tumors shrank significantly, leading to a period of relative stability.
Facing Recurrences
Unfortunately, as new tumors developed in his liver, Paul underwent Yttrium-90 (Y90) radiation therapy, administered by Dr. Steve Lee at Weill Cornell. Although the procedure initially proved successful, the cancer returned, prompting Paul to explore additional treatments, including stereotactic body radiation therapy (SBRT) and Keytruda, a promising immunotherapy option.
Triumphs and Trials
In early 2023, Paul faced yet another challenge with a new tumor on his right rectus muscle. After surgical removal by Dr. Michael Kluger at Columbia University Irving Medical Center, Paul experienced a brief period of relief. However, by September, scans revealed five recurring tumors in his liver, along with one on his omentum.
Continuing the Fight
As of December 2023, Paul is scheduled for further Y90 treatments and SBRT to combat these new tumors. Remarkably, he has managed to avoid harsher chemotherapy options, preserving his quality of life amid ongoing challenges. His journey serves as an inspiring testament to resilience in the face of pancreatic cancer.
A Message of Hope
After navigating this extensive journey, Paul Suntup remains committed to living life fully and advocating for those battling pancreatic cancer. His story is a powerful reminder of the importance of early detection, personalized treatment options, and the strength of the human spirit in overcoming adversity.
To hear more about Paul’s inspiring journey, check out “Proud to be Living with Pancreatic Cancer” here.
