Uncovering Hidden Health Issues: Why You Shouldn’t Settle for ‘Nothing’s Wrong’ from Your Doctor
In March 2023, during a family vacation in Fort Collins, Colorado, Brandon Stone received a life-altering diagnosis: pancreatic cancer. Initially, he had been suffering from abdominal discomfort, which escalated, prompting him to seek medical advice from multiple doctors back in Iowa. Despite abnormal bloodwork indicating serious issues, he faced repeated dismissals from healthcare professionals. It wasn’t until he developed jaundice in Colorado that he finally got the attention he needed.
The Journey to Diagnosis
Brandon’s journey began with symptoms that included abdominal pain and jaundice, leading him to urgent care in Fort Collins. Here, a thorough examination revealed alarming changes in his health. An ultrasound uncovered a mass on his liver, which prompted an emergency CT scan. The results were grim: a mass was identified on the head of his pancreas. On March 15, 2023, he was officially diagnosed with stage IV pancreatic adenocarcinoma after further tests were conducted.
- Initial Symptoms: Abdominal discomfort, jaundice
- Diagnosis Date: March 15, 2023
- Cancer Type: Stage IV pancreatic adenocarcinoma
Treatment Begins in Iowa
Once back home in Iowa, Brandon and his wife, Morgan, consulted with Dr. Joshua Lukenbill at Mission Cancer + Blood in Des Moines. Genetic testing was ordered, revealing that he carried the BRCA2 and KRAS G12V mutations. This led to a change in his treatment plan to FOLFIRINOX, with the hope of participating in a clinical trial after 16 weeks of therapy.
Enrolling in a Clinical Trial
From April to August 2023, Brandon underwent treatment with FOLFIRINOX before enrolling in a clinical trial involving Olaparib. He was placed in the control group, which meant he only received Olaparib. While it was disappointing not to receive the additional treatment, this arrangement allowed him to enjoy a much-needed family Disney cruise.
- Trial Duration: April to August 2023
- Treatment Adjustment: Switched to FOLFIRI after trial results indicated medication was ineffective
Navigating Treatment Challenges
As his treatment progressed, Brandon faced complications, including discomfort in his liver. After scans revealed that FOLFIRI wasn’t sufficient to halt tumor growth, he returned to the Gemzar and Abraxane regimen. Encouragingly, this shift brought about significant improvements in his health.
Staying Grounded Amidst Challenges
Despite the arduous journey, Brandon found ways to stay mentally and emotionally stable. He incorporated guided meditations into his daily routine and maintained a treatment schedule that allowed him to attend his children’s activities. The side effects of chemotherapy were challenging, but he managed to keep his spirits up, even participating in his children’s sports and playing drums with a local band, The Nadas.
- Treatment Schedule: Gemzar and Abraxane every other week
- Mental Health Strategies: Guided meditations, active family involvement
Advice for Others Facing Cancer
Brandon’s experience has imparted valuable lessons for others navigating similar challenges:
- Be Proactive in Your Health: Advocate for yourself and seek multiple opinions if necessary.
- Choose the Right Oncologist: Find a doctor who respects your treatment preferences and keeps you informed.
- Prioritize Mental Health: Seek support for yourself and your caregiving team; cancer impacts everyone involved.
Brandon’s cancer journey serves as both a cautionary tale and an inspiration. He continued to fight bravely, exploring every possible treatment option while cherishing moments with his family. His passing shortly after sharing his story leaves a profound impact, and his resilience will be remembered by all who knew him.
