Older Brother Undergoes Regular Cancer Screenings After Younger Sibling’s Pancreatic Cancer Diagnosis
Brothers Scott and Steve Nelson have faced the harrowing journey of pancreatic cancer, each in their own time yet bound by their family’s genetic legacy. With a shared history of the BRCA2 mutation, their experiences underscore the critical nature of genetic testing and proactive health screenings. Their story not only highlights resilience but also emphasizes the importance of brotherly solidarity in the fight against cancer.
Scott’s Journey: A Life-Changing Diagnosis
At 50 years old in 2004, Scott Nelson was determined to improve his health, particularly focusing on his cholesterol levels. During routine check-ups, he began experiencing unusual stomach issues, prompting his doctor to order further tests. An ultrasound revealed a troubling tumor on his pancreas, initiating a weekend filled with distressing research and uncertainty.
Faced with the urgency of surgery, Scott opted for a second opinion at the renowned Mayo Clinic. There, he was referred to Dr. Tim Sielaff, a specialist who guided him toward a Whipple procedure after further examinations indicated complications due to the tumor’s proximity to a blood vessel. Scott underwent chemotherapy and radiation to shrink the tumor as part of a clinical trial, which ultimately allowed him to proceed with the critical surgery.
After a rigorous treatment regimen, Scott was declared cancer-free and has since become a passionate advocate for pancreatic cancer awareness. He actively participates in the Survivor & Caregiver Network through PanCAN and collaborates with various organizations to support and guide others navigating similar challenges. His experiences have been invaluable in educating others about the importance of early detection and the potential benefits of targeted treatments for those with the BRCA2 mutation.
Steve’s Vigilance: Proactive Screening Saves Lives
Steve Nelson’s own battle with cancer began two years after his brother’s diagnosis when he was diagnosed with prostate cancer. Aware of the family’s genetic predisposition due to the BRCA2 mutation, Steve and several family members enrolled in the Cancer of the Pancreas Screening Study (CAPS) at Johns Hopkins in 2009. Following initial testing at the Mayo Clinic, he learned about the presence of a pancreatic neuroendocrine tumor and a cyst, sparking a diligent screening regimen.
As Steve continued his surveillance, a narrowing pancreatic duct raised concerns, leading to further procedures including an endoscopic retrograde cholangiopancreatography (ERCP). When tests indicated that his cells were on the brink of malignancy, Steve made the decisive choice to undergo surgery. He had a laparoscopic distal pancreatectomy, which fortunately revealed no cancerous cells, allowing for a swift recovery.
A Unique Bond and Shared Advocacy
Both brothers have utilized their experiences to raise awareness and funds for pancreatic cancer research. They have participated in advocacy efforts in Washington, D.C., representing PanCAN and connecting with individuals directly impacted by cancer. Scott and Steve believe their shared journey can inspire hope among patients and families grappling with this daunting diagnosis.
Their combined efforts emphasize that proactive measures, like genetic testing and regular screenings, can be life-saving. The brothers’ unique story serves as a beacon of hope, demonstrating that early intervention and informed health choices can lead to positive outcomes, even in the face of adversity.
To learn more about their inspiring journey, watch Scott and Steve share their experiences in the video “Identify Your Risk Early.”
