Unexpected Discovery: Pancreatic Cancer Detected by Chance
In a startling turn of events during a routine physical in April 2015, Barry Reiter received a diagnosis of prostate cancer. However, the situation took a more serious turn when a pre-surgical MRI revealed the presence of pancreatic cancer. This revelation marked the beginning of a challenging journey for Barry and his family, as they navigated the complexities of cancer treatment.
The Diagnosis: A Life-Altering Phone Call
On July 1, 2015, an unexpected call from Dr. Brian McNelis, Barry’s former oncologist, changed everything. As Barry took a seat, he braced himself for the news: “I regret to inform you that you have pancreatic cancer.” In that moment, Barry felt his world collapse. Thoughts of his family—his wife, children, and grandchildren—overwhelmed him. For days, he grappled with despair, preparing for what he feared would be the end.
Treatment Journey: Overcoming the Odds
Following his diagnosis, Barry underwent an endoscopic ultrasound at North Shore University Hospital on Long Island. Subsequent tests at Memorial Sloan Kettering confirmed that he had stage III locally advanced pancreatic cancer, rendering him ineligible for immediate surgery. His treatment plan began with FOLFIRINOX, a chemotherapy regimen notorious for its harsh side effects. After six months of rigorous treatment, Barry received promising news: the surgical team was prepared to attempt a procedure.
On January 19, 2016, Barry underwent a distal pancreatectomy and splenectomy. Though he faced significant challenges post-surgery, including near-fatal complications, he ultimately recovered after 22 days in the hospital. The breakthrough came when Dr. Michael D’Angelica, his surgeon, delivered the life-changing news: “You are NED—no evidence of disease.” With his tumor markers clear and all lymph nodes tested negative, Barry experienced an overwhelming sense of joy, embracing his wife, Hildee, with tears of relief.
A New Purpose: Supporting Others in the Fight
Reflecting on his harrowing journey, Barry discovered unexpected gratitude for his initial prostate cancer diagnosis. The unwavering support from his family, particularly his son Josh and wife Hildee, proved crucial during his darkest moments. Recognizing the importance of a positive outlook, Barry became an advocate for pancreatic cancer awareness.
He actively raised funds for organizations like the Pancreatic Cancer Action Network and the Lustgarten Foundation. Additionally, Barry founded an online support group for patients, caregivers, and families affected by pancreatic cancer. This community became a source of strength, where members shared their struggles and hopes, fostering a sense of belonging.
The Legacy of Hope
Sadly, three and a half years after his diagnosis, Barry lost his battle with pancreatic cancer. He had established a Facebook support group, Pancreatic Cancer: NEGU, embodying his motto: “Never Ever Give Up.” His story serves as a poignant reminder of the resilience of the human spirit and the importance of community support in the fight against cancer.
Our heartfelt condolences go out to Barry’s family during this difficult time. His legacy of hope and determination will continue to inspire many.
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